Bisphosphonate Pamidronate changed my life! 😇🙏 But, I am NOT a doctor so nothing in this post should be used as medical advice. I do however hope I make CRPS patients aware that they have options and the ultimate final say in their healthcare. You DO have the power to get multiple medical professionals to give their advice on your situation. While I might not be able to refer you, this treatment still has the potential to bring you hope as a CRPS patient or CRPS amputee like me. It’s not FDA a
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Day one of Isaiah’s pamidronate treatment was so perfectly boring 🙌🏻🙌🏻🙌🏻 and we were so grateful for it! We had some time in between appointments so we stopped by the cafeteria to eat some lunch and hung out by this cool #discoveryzone. Isaiah had SO MUCH FUN! The screen goes through the seasons and his favorite by far was winter- he loved freezing in a fun position and would shake to break the ice.... this was the first time he’s ever excitedly yelled “MAMA LOOK!” so my heart was basicall
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