National Organization for Rare Disorders | NORD
Jan 6, 2026 · National Organization for Rare Disorders (NORD®) NORD advances practical, meaningful, and enduring change so people with rare diseases can live their fullest and best …
Financial Assistance For Patients With Rare Diseases | NORD
NORD’s Rare Caregiver Respite program was an absolute lifeline for our family this past year. With the respite program, I was able to select a family friend who I trusted, who was already …
List of Rare Diseases | A-Z Database | NORD
What Is the NORD ® Rare Disease Database? The NORD Rare Disease Database is an inclusive and comprehensive list of rare diseases based on information from established rare disease …
Centers of Excellence - National Organization for Rare Disorders
NORD is committed to breaking down silos and building bridges so that people living with a rare disease can achieve their best health and well-being. Our belief is that the NORD Rare …
About Us - National Organization for Rare Disorders
Discover NORD's mission to drive rare disease research, support patients, and advocate for transformative healthcare policies nationwide.
Rare Diseases Support, Resources & Help | NORD
Can NORD help find a medical expert for my rare disease? Many patient organizations provide lists of medical experts. Search NORD’s Organizational Database to find disease-specific …
How NORD Can Help - Resources, Financial Support, & More
Help with Rare Disease Whether you need help getting a diagnosis, finding resources to assist in finding a specialist, finding a clinical trial, paying medical bills, or affording drugs, NORD is …
Events - National Organization for Rare Disorders
NORD® Rare Disease Scientific Symposium Rare disease breakthroughs don’t happen in isolation—they require collaboration, innovation, and a united commitment to progress.
Sotos Syndrome - Symptoms, Causes, Treatment | NORD
May 19, 2025 · Learn about Sotos Syndrome, including symptoms, causes, and treatments. If you or a loved one is affected by this condition, visit NORD to find resources and
Rare Disease Research Grant Program | NORD
Explore NORD's research funding opportunities and submit innovative proposals advancing rare disease understanding, treatment, and potential breakthrough discoveries.