After years of unexplained symptoms and setbacks, my cystic fibrosis diagnosis became both an answer and a turning point — turning my struggle into resilience and my passion into purpose.

Watching my son struggle without access to his CF medication was heartbreaking. But the hope that came when our community rallied behind us is something I’ll never forget.

As I entered middle age, what I thought was normal aging turned out to be undiagnosed CF — a realization that reshaped everything from daily treatments to my understanding of my family’s health ...

I remember the exact moment we realized Trikafta wasn’t the miracle drug we hoped it would be. Our 5-year-old daughter, Olivia, had become inconsolable and withdrawn, and was saying words that no ...

The U.S. Food and Drug Administration has approved the use of ivacaftor (Kalydeco®) for children as young as 6 months. The U.S. Food and Drug Administration (FDA) has approved the use of ivacaftor ...

Today, in honor of World Oxygen Day (October 2), leading patient, provider, and professional organizations are amplifying the voices of people on supplemental oxygen to stress the critical importance ...

BETHESDA, Md. (July 16, 2025) – Today, the Cystic Fibrosis Foundation announced an additional investment of up to $24 million in Prime Medicine to continue the development of a gene editing therapy ...

“He who does not know how to look back to where he came from will never get to his destination.” — Dr. José Rizal I was a 19-year-old Filipino American with cystic fibrosis when I recognized my duty ...

When I tell people I’m training for a full Ironman competition, their reactions range from raised eyebrows to outright disbelief. It involves swimming 2.4 miles, biking 112 miles, then running a full ...

On behalf of the 272 undersigned organizations committed to the health of our nation’s mothers, infants, children, and families, we express our deep concern over the Administration’s recent decision ...