After years of unexplained symptoms and setbacks, my cystic fibrosis diagnosis became both an answer and a turning point — turning my struggle into resilience and my passion into purpose.
Watching my son struggle without access to his CF medication was heartbreaking. But the hope that came when our community rallied behind us is something I’ll never forget.
As I entered middle age, what I thought was normal aging turned out to be undiagnosed CF — a realization that reshaped everything from daily treatments to my understanding of my family’s health ...
Medical Experts From 46 Countries to Collaborate at World's Largest Forum on CF Research and Care for Life-Threatening Genetic Disease WHAT: The 31st Annual North American Cystic Fibrosis Conference ...
New modulators in development by the CF-specific company could provide unique treatment options for the underlying cause of cystic fibrosis for many people with the disease BETHESDA, Md. — The Cystic ...
I did the research. I asked the questions. I thought I knew what to expect when I had a double-lung transplant. I was surprised by what I learned. During the 18 months I spent waiting for a ...
The Cystic Fibrosis Foundation recently announced that there are almost 40,000 people living with CF in the United States. Not only are there more of us with CF, but we are now living longer. Based on ...
Food insecurity is a long-standing problem in America. According to the U.S. Department of Agriculture (USDA), food-insecure households are those with “limited or uncertain access to adequate food.” ...
The U.S. Food and Drug Administration has approved the use of ivacaftor (Kalydeco®) for children as young as 6 months. The U.S. Food and Drug Administration (FDA) has approved the use of ivacaftor ...
Blue skies and energy from the sun's radiant heat nourished my body. I soaked in the rays outside my home in Lancaster, Ohio, fielding calls and messages from all over the world. People wished me well ...