CROSBY TOWNSHIP, Ohio (WKRC) – A local man is putting his pedaling skills to work for a good cause. He’s biking for the rare disease epidermolysis bullosa, or EB. He is the great uncle to two young ...

Eddie Vedder played two intimate concerts in his hometown of Seattle at Benaroya Hall on October 23rd and 24th to bring support to a cause that is near to his heart – EB Research Partnership (EBRP).

A revolutionary treatment brings new hope to those suffering from a devastating rare skin disorder, while showcasing an innovative funding model that could transform rare disease research In a ...

ROCK4EB! with YOU AND ME (PINK + DALLAS GREEN), JIM JEFFERIES, BILLY HARRIS, AND JUDD APATOW AT EBMRF BENEFIT. This year’s star-studded Rock4EB! concert for epidermolysis bullosa was a success. On ...

BOSTON--(BUSINESS WIRE)--BPGbio, Inc., a leading biology-first, AI-powered, clinical stage biopharma focused on mitochondrial biology and protein homeostasis, today announced that the U.S. Food and ...

Eddie Vedder is at the heart of Matter of Time, which arrives on Netflix this Monday, February 9, but the new documentary does not focus on the singer’s storied exploits with his band Pearl Jam.

As influencer Hannah Campbell mourns the death of her 10-month-old daughter, Elliana Rose, she is also doing her part to fight the disease that affected her baby girl. “Our sweet girl Elliana Rose ...

Patients with severe dystrophic epidermolysis bullosa, or EB, have skin so fragile, the slightest touch can lead to blistering and, eventually, large, open wounds that never heal, causing immense pain ...

Please provide your email address to receive an email when new articles are posted on . BPM31510T previously received orphan drug designation. Phase 2/ 3 trials are expected to commence in 2025. The ...

BOSTON--(BUSINESS WIRE)--Please replace the release with the following corrected version due to revisions to the second and fourth bullet points in the body of ...